To be added

Daily Variation in Sleep Quality is Associated With Health-Related Quality of Life in People With Spinal Cord Injury

Carlozzi NE, Freedman J, Troost JP, Carson T, Molton IR, Edhe DM, Najarian K, Miner JA, Boileau NR, Kratz AL. Arch Phys Med Rehabil.103(2): 263-273. 2022. PMID: 34416248. PMC8810726.

How Do Fluctuations in Pain, Fatigue, Anxiety, Depressed Mood, and Perceived Cognitive Function Relate to Same-Day Social Participation in Individuals With Spinal Cord Injury?

Kuzu D, Troost JP, Carlozzi NE, Ehde DM, Molton IR, Kratz AL. Arch Phys Med Rehabil. 2022 Mar;103(3):385-393. doi: 10.1016/j.apmr.2021.07.809. Epub 2021 Aug 27. PMID: 34454899; PMCID: PMC9202231.

Prerenal Transplant Education and Evaluation Positively Impacts Outcomes

Jesse MT, Clifton E, Kim DY, Nicholson D, Patil R, Bhavsar S, Desai S, Gartrelle K, Eshelman A, Fleagle E, Ahmedani B, Carlozzi NE, Tang A, Patel A. Prog Transplant. 2022 Mar;32(1):4-10. doi: 10.1177/15269248211064888. Epub 2021 Dec 3. PMID: 34860614.

National Institutes of Health Pathways to Prevention Workshop: Physical Activity and Health for Wheelchair Users

Gurwitz JH, Carlozzi NE, Davison KK, Evenson KR, Gaskin DJ, Lushniak B. Arch Rehabil Res Clin Transl. 3(4): 100163. 2021. PMID: 34977545. PMC8683862.

An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial

Carlozzi NE, Choi SW, Wu Z, Miner JA, Lyden AK, Graves CM, Wang J, Sen S. JMIR Res Protoc. 10(12): e32842. 2021. PMID: 34889775. PMC8704108.

The association between medication use and cognitive performance in people with SCI

Carlozzi NE, Troost JP, Singhal N, Edhe DM, Bakshi R, Molton IR, Miner JA, Graves CM, Kratz AL. Rehabil Psychol. 66(4): 541-549. 2021. PMID: 34618512.

Association of physical and mental symptoms with cognition in people with spinal cord injury

Carlozzi NE, Graves CM, Troost JP, Ehde DM, Miner JA, Kratz AL. Rehabil Psychol. 66(4): 532-540. 2021. PMID: 34618509. PMC8648971.

Health-Related Quality of Life in Focal Segmental Glomerular Sclerosis and Minimal Change Disease: A Qualitative Study of Children and Adults to Inform Patient-Reported Outcomes

Carlozzi NE, Massengale SF, Trachtman H, Walsh L, Singhal N, LaVigne JM, Miner JA, Desmond HE, Lynam C, Gipson DS. Kidney Med. 3(4): 484-497. 2021. PMID: 34401716. PMC8350833.

Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life

Sokol LL, Troost JP, Kluger BN, Applebaum AJ, Paulsen JS, Bega D, Frank S, Hauser JM, Boileau NR, Depp CA, Cella D, Carlozzi NE. Ann Clin Transl Neurol. 8(8): 1668-1679. 2021. PMID: 34288600. PMC8351386.

Huntington’s Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

Gornick MC, Ryan KA, Dayalu P, Carlozzi NE, Albin RL. Zahuranec DB. Tremor Other Hyperkinet Mov (N.Y). 11:3. 2021. PMID: 33569244. PMC7845464.

Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study

Lange R, Kumagai A, Weiss S, Zaffke KB, Day S, Wicker D, Howson A, Thiran Jayasundera K, Smolinski L, Hedlich C, Lee PP, Massof RW, Stelmack JA, Carlozzi NE, Ehrlich JR. J Patient Rep Outcomes. 5(1): 7. 2021. PMID: 33439361. PMC7806695.

Understanding speech and swallowing difficulties in individuals with Huntington disease: Validation of the HDQLIFE Speech Difficulties and Swallowing Difficulties Item Banks

Carlozzi NE, Boileau NR, Roberts A, Dayalu P, Hanifan DL, Miner JA, Claassen D, Mower Provost E. Qual Life Res. 30(1): 251-265. 2021. PMID: 32839864. PMC7854808

Validation of the Pittsburgh Fatigability Scale in a mixed sample of adults with and without chronic conditions

Carlozzi NE, Boileau NR, Murphy SL, Braley TJ, Kratz AL. J Health Psychol. 26(9): 1455-1467. 2021. PMID: 31530191. PMC7078014

Severity of military traumatic brain injury influences caregiver health-related quality of life

Brickell TA, Cotner BA, French LM, Carlozzi NE, O'Connor DR, Nakase-Richardson R, Lange RT. Rehabil Psychol. 2020 Jan 23:10.1037/rep0000306. doi: 10.1037/rep0000306. Epub ahead of print. PMID: 31971431; PMCID: PMC7375900.

Do emotional distress and functional problems in persons with traumatic brain injury contribute to perceived sleep-related impairment in caregivers?

Kratz AL, Boileau NR, Sander AM, Nakase-Richardson R, Hanks RA, Massengale JP, Miner JA, Carlozzi NE. Rehabil Psychol. 2020 May 14:10.1037/rep0000327. doi: 10.1037/rep0000327. Epub ahead of print. PMID: 32406737; PMCID: PMC7665992.

Health literacy, health outcomes, and the caregiver role in traumatic brain injury

Hahn EA, Boileau NR, Hanks RA, Sander AM, Miner JA, Carlozzi NE. Rehabil Psychol. 2020 May 28:10.1037/rep0000330. doi: 10.1037/rep0000330. Epub ahead of print. PMID: 32463261; PMCID: PMC7704789.

Sleep impairment is related to health-related quality of life among caregivers of lower-functioning traumatic brain injury survivors

Carlozzi NE, Boileau NR, Hanks RA, Sander AM, Nakase-Richardson R, Massengale JP. Rehabil Psychol. 2020 Aug 10:10.1037/rep0000334. doi: 10.1037/rep0000334. Epub ahead of print. PMID: 32772535; PMCID: PMC7873168.

Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)

Carlozzi NE, Boileau NR, Roche MW, Ready RE, Perlmutter JS, Chou KL, Barton SK, McCormack MK, Stout JC, Cella D, Miner JA, Paulsen JS. Qual Life Res. 29(12): 3419-3439. 2020. PMID: 32813263. PMC7686156

Perceptions of the impact of chorea on health-related quality of life in Huntington disease (HD): A qualitative analysis of individuals across the HD spectrum, family members, and clinicians

Wexler Sherman C, Iyer R, Abler V, Antonelli A, Carlozzi NE. Neuropsychol Rehabil. 30(6):1150-1168. 2020. PMID: 30849283. PMC7685000

Establishing the factor structure of a health-related quality of life measurement system for caregivers of persons living with traumatic brain injury

Raad JH, Tulsky D, Lange RT, Brickell TA, Sander AM, Hanks RA, French L, Miner JA, Carlozzi NE. Arch Phys Med Rehabil. 101(7): 1220-1232. 2020. PMID: 32315649. PMC7311311

Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance

Carlozzi NE, Lange RT, Kallen MA, Boileau NR, Sander AM, Massengale JP, Nakase-Richardson R, Tulsky DS, French LM, Hahn EA, Ianni PA, Miner JA, Hanks R, Brickell TA. Rehabil Psychol. 65(4): 418-431. 2020. PMID: 31971432. PMC7375946

Understanding domains that influence perceived stigma in individuals with Huntington disease

Boileau NR, Paulsen JS, Ready RE, Hahn EA, Lai JS, Carlozzi NE. Rehabil Psychol. 65(2): 113-121. 2020. PM31961169

Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI)

Hanks RA, Boileau NR, Norman AL, Nakase-Richardson R, Mariouw KH, Carlozzi NE. Rehabil Psychol. 65(4): 347-359. 2020. PMID: 31916806. PMC7643714.

TBI-CareQOL Military Health Care Frustration in caregivers of service members/veterans with traumatic brain injury

Carlozzi NE, Lange RT, French LM, Kallen MA, Boileau NR, Hanks RA, Nakase-Richardson R, Massengale JP, Sander AM, Hahn EA, Miner JA, Brickell TA. Rehab Psych. 65(4): 370-376. 2020. PMID: 31916805. PMC7343601

TBI-CareQOL Family Disruption: Family disruption in caregivers of persons with TBI

Carlozzi NE, Lange RT, Boileau NR, Kallen MA, Sander AM, Hanks RA, Nakase-Richardson R, Tulsky DS, Massengale JP, French LM, Brickell TA. Rehabil Psychol. 65(4): 390-400. 2020. PMID: 31841019. PMC7295660

Measuring emotional suppression in caregivers of adults with traumatic brain injury

Carlozzi NE, Kallen MA, Brickell TA, Lange RT, Boileau NR, Tulsky D, Hanks RA, Massengale JP, Nakase-Richardson R, Ianni PA, Miner JA, French LM, Sander AM. Rehabil Psychol. 65 (4): 455-470. 2020. PMID: 31580109. PMC7117989

Psychometric properties and responsiveness of Neuro-QoL Cognitive Function in persons with Huntington disease (HD)

Carlozzi NE, Boileau NR, Paulsen JS, Downing NR, Ready R, Perlmutter JS, Cella D, Chou KL, McCormack MK, Barton S, Lai JS. Qual Life Res. 29(5): 1393-1403. 2020. PMID: 31853881. PMC7195233

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL)

Carlozzi NE, Boileau NR, Kallen MA, Nakase-Richardson R, Hahn EA, Tulsky DS, Miner JA, Hanks RA, Massengale JP, Lange RT, Brickell TA, French LM, Ianni PA, Sander AM. Rehabil Psychol. 65(4):323-336. 2020. PMID: 31829641. PMC7357718

HDQLIFE and Neuro‐QOL physical function measures: Responsiveness in persons with Huntington’s disease

Carlozzi NE, Boileau NR, Chou KL, Ready RE, Cella D, McCormack MK, Miner JA, Dayalu P. Movement Disorders 35(2): 326-336, 2020.

Reply to K.P. Weinfurt et al.

Agochukwu NQ, Wittmann D, Boileau NR, Dunn RL, Montie J, Kim T, Miller DC, Peabody J, Carlozzi NE. J Clin Oncol 38(6): 654-655, 2020. PM31895615

Development and psychometric characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale

Kisala PA, Tulsky DS, Boulton AJ, Heinemann AW, Victorson D, Sherer M, Sander AM, Chiaravalloti N, Carlozzi NE, Hanks R. Arch Phys Med Rehabil 101(1): 33- 42, 2020. PM31473207

Measuring pain in traumatic brain injury: Development of the TBI-QOL Pain Interference Item Bank and Short Form

Carlozzi NE, Kisala PA, Boulton AJ, Roth E, Kratz AL, Sherer M, Sander AM, Heinemann AW, Chiaravalloti ND, Bushnik T, Tulsky DS. Arch Phys Med Rehabil 101(1): 11-19, 2020. PM31562878

Responsiveness to change over time: An examination of the Neuro-QoL Social Function measures in persons with Huntington’s disease

Carlozzi NE, Boileau NR, Hahn EA, Barton SK, Cella D, McCormack MK, Ready RE. J Huntingtons Dis 9(1): 83-97, 2020. PM31744014

The longitudinal relationship between patient-reported outcomes and clinical characteristics among patients with focal segmental glomerulosclerosis in the Nephrotic Syndrome Study Network

Troost JP, Waldo A, Carlozzi NE, Murphy S, Modersitzki F, Trachtman H, Nachman PH, Reidy KJ, Selewski DT, Herreshoff EG, Srivastava T, Gibson KL, Derebail VK, Jar Lin J, Hingorani S, Fornoni A, Fervenza FC, Sambandam K, Athavale AM, Kopp JB, Reich HN, Adler SG, Greenbaum LA, Dell KM, Appel G, Wang C-S, Sedor J, Kaskel FJ, Lafayette RA, Atkinson MA, Lieske JC, Sethna CB, Kretzler M, Hladunewich MA, Lemley KV, Brown E, Meyers KE, Gadegbeku CA, Holzman LB, Jefferson JA, Tuttle KR, Singler P, Hogan MC, Cattran DC, Barisoni L, Gipson DS, Nephrotoc Sundrom Study Network. Clin Kidney J. 13(4): 597-606. 2019. PMID: 32905199. PMC7467600.

The development of a new computer adaptive test to evaluate feelings of being trapped in caregivers of individuals with traumatic brain injury: TBI-CareQOL Feeling Trapped Item Bank

Carlozzi NE, Kallen MA, Hanks R, Kratz AL, Hahn EA, Brickell TA, Lange RT, French LM, Ianni PA, Miner JA, Sander AM. Archives of Physical Medicine and Rehabilitation 100(4S):S43-S51, 2019. PMID: 30075146; PMC6422745

Survey response burden in caregivers of people with traumatic brain injury

Hahn EA, Ianni PA, Hanks R, Miner JA, Freedman J, Carlozzi NE. Patient Relat Outcome Meas 10:59-66. 2019. PMID: 30881163. PMC6398416

Group differences among caregivers of civilians and service members or veterans with traumatic brain injury

Keatley E, Hanks R, Sander AM, Kratz AL, Kallen M, Tulsky DS, Carlozzi NE. Arch Phys Med Rehabil. 100(4S): S52-S57. 2019. PMID: 30537488. PMC6528672

Health-related quality of life in glomerular disease: A report from the CureGN study

Canetta PA, Troost JP, Mahoney S, Kogon AJ, Carlozzi NE, Bartosh SM, Cai Y, Davis TK, Fernandez H, Fornoni A, Gbadegesin RA, Herreshoff E, Mahan JD, Nachman PH, Selewski DT, Sethna CB, Srivastava T, Tuttle KR, Wang C, Falk RJ, Gharavi AG, Gillespie BW, Greenbaum LA, Holzman LB, Kretzler M, Robinson BM, Smoyer WE, Guay-Woodford LM, Reeve B, Gipson DS, CureGN Consortium. Kidney Int. 95(5): 1209-1224. 2019. PMID: 30898342. PMC6743723

The development of a two new computer adaptive tests to evaluate feelings of loss in caregivers of individuals with traumatic brain injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person with Traumatic Brain Injury

Carlozzi NE, Kallen MA, Ianni PA, Sander AM, Hahn EA, Lange RT, Brickell TA, French LM, Miner JA, Hanks R. Arch Phys Med Rehabil. 100(4S): S31-S42. 2019. PMID: 29958904. PMC6309950

The development of a new computer adaptive test to evaluate anxiety in caregivers of individuals with traumatic brain injury: TBI-CareQOL Caregiver-Specific Anxiety

Carlozzi NE, Kallen MA, Sander AM, Brickell TA, Lange RT, French LM, Ianni PA, Miner JA, Hanks R. Arch Phys Med Rehabil. 100(4S): S22-S30. 2019. PMID: 29958902. PMC6309947.

The development of a new computer-adaptive test to evaluate strain in caregivers of individuals with traumatic brain injury: TBI-CareQOL Caregiver Strain

Carlozzi NE, Kallen MA, Ianni PA, Hahn EA, French LM, Lange RT, Brickell TA, Hanks R, Sander AM. Arch Phys Med Rehabil. 100(4S): S13-S21. 2019. PMID: 29966647 PMC6389439.

Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Reliability and validity data for the TBI-CareQOL measurement system

Carlozzi NE, Lange RT, French LM, Sander AM, Ianni PA, Tulsky DS, Miner JA, Kallen MA, Brickell TA. Arch Phys Med Rehabil. 100(4S): S85-S93. 2019. PMID: 29966648. PMC6311445

Understanding Health-related Quality of Life in Caregivers of Civilians and Service Members/Veterans with Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Mental Health Measures

Carlozzi NE, Hanks R, Lange RT, Brickell TA, Ianni PA, Miner JA, French LM, Kallen MA, Sander AM. Arch Phys Med Rehabil. 100(4S): S94-S101. 2019. PMID: 29932885. PMC6301134.

Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS Fatigue and Sleep Disturbance item banks

Carlozzi NE, Ianni PA, Tulsky DS, Brickell TA, Lange RT, French LM, Cella D, Kallen MA, Miner JA, Kratz AL. Arch Phys Med Rehabil. 100(4S): S102-S109. 2019. PMID: 29932884. PMC6309292.

Emotional suppression and hypervigilance in military caregivers: Relationship to negative and positive affect

Sander AM, Boileau NR, Hanks RA, Tulsky DS, Carlozzi NE. J Head Trauma Rehabil 35(1): E10-E20, 2020. PM31365438

Decision-making in cleft-related surgery: A qualitative analysis of patients and caregivers

Bennett KG, Patterson AK, Schafer K, Haase M, Ranganathan K, Carlozzi NE, Vercler CJ, Kasten SJ, Buchman SR, Waljee JF. Cleft Palate Craniofac J 57(2): 161-168, 2020. PM31382774

Sociocultural factors influencing caregiver appraisals following traumatic brain injury

Sander AM, Hanks RA, Ianni PA, Boileau NR, Kratz AL, Hahn EA, Tulsky DS, Carlozzi NE. Arch Phys Med Rehabil 100(4S): S58-S64, 2019. PM30365926/PMC6435379

Development and psychometric characteristics of the TBI-QOL Communication Item Bank

Cohen ML, Kisala PA, Boulton AJ, Carlozzi NE, Cook CV, Tulsky DS. J Head Trauma Rehabil 34(5): 326-339, 2019. PM31498231

Assessing barriers to healthy eating in hospitalized older adults with heart failure: Psychometric properties of two questionnaires

Marolt C, Miller A, Carlozzi NE, Karmally W, Helmke S, Teruya S, Wells J, Trumble E, Maurer MS, Hummel SL. J Card Fail 26(3): 223-226, 2019. PM31580890

Validity of the Patient-Reported Outcome Measurement Information System (PROMIS) Sexual Interest and Satisfaction measures in men following radical prostatectomy

Agochukwu NQ, Wittmann D, Boileau NR, Dunn RL, Montie JE, Kim T, Miller DC, Peabody J, Carlozzi NE. J Clin Oncol 37(23): 2017-2027, 2019. PM31232671

The longitudinal relationship between patient-reported outcomes and clinical characteristics among patients with focal segmental glomerulosclerosis in the Nephrotic Syndrome Study Network

Troost JP, Waldo A, Carlozzi NE, Murphy S, Modersitzki F, Trachtman H, Nachman P, Reidy K, Selewsi D, Herreshoff E, Srivastava T, Gibson K, Derebail V, Jar Jin J, Hingorani S, Fornoni A, Fervenza F, Sambandam K, Athavale A, Kopp J, Reich H, Adler S, Greenbaum L, Dell K, Appel G, Wang C, Sedor J, Kaskel F, Lafayette R, Atkinson M, Lieske J, Sethna C, Kretzler M, Hladunewich M, Lemley K, Brown E, Meyers K, Gadegbeku C, Holzman L, Jefferson J, Tuttle K, Singer P, Hogan M, Cattran D, Barisoni L, Gipson D. Clinical Kidney Journal sfz092: 10, 2019

Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS Fatigue and Sleep Disturbance Item Banks

Carlozzi NE, Ianni PA, Tulsky DS, Brickell TA, Lange RT, French LM, Cella D, Kallen MA, Miner JA, Kratz AL. Arch Phys Med Rehabil 100(4S): S102-S109, 2019. PM29932884/PMC6309292

Understanding health-related quality of life of caregivers of civilians and service members /veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS Social Health measures

Carlozzi NE, Ianni PA, Lange RT, Brickell TA, Kallen MA, Hahn EA, French LM, Cella D, Miner JA, Tulsky DS. Arch Phys Med Rehabil 100(4S): S110-S118, 2019. PM30075148/PMC6355379

Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Establishing the reliability and validity of PROMIS Mental Health measures

Carlozzi NE, Hanks R, Lange RT, Brickell TA, Ianni PA, Miner JA, French LM, Kallen MA, Sander AM. Arch Phys Med Rehabil 100(4S): S94-S101, 2019. PM29932885/PMC6301134

Perceptions of the impact of chorea on health-related quality of life in Huntington disease (HD): A qualitative analysis of individuals across the HD spectrum, family members, and clinicians

Sherman CW, Iyer R, Abler V, Antonelli A, Carlozzi NE.  Neuropsychol Rehabil 2019: 1-19, 2019. PM30849283

Survey response burden in caregivers of civilians and service members/veterans with traumatic brain injury

Hahn EA, Ianni PA, Hanks RA, Miner JA, Freedman J, Carlozzi NE. Patient Relat Outcome Meas 10: 59-66, 2019. PM30881163/PMC6398416

Positive affect and well-being in Huntington’s disease moderates the association between functional impairment and health-related quality of life outcomes

Ready RE, Boileau NR, Barton SK, Lai JS, McCormack MK, Cella D, Fritz NE, Paulsen JS, Carlozzi NE. J Huntingtons Dis 8(2): 221-232, 2019. PM31045519/PMC7008959

Health related quality of life in adult low and high-grade glioma patients using the National Institutes of Health Patient Reported Outcomes Measurement Information System (PROMIS) and Neuro-QOL assessments

Gabel N, Altshuler DB, Brezzell A, Briceño EM, Boileau NR, Miklja Z, Kluin K, Ferguson T, McMurray K, Wang L, Smith SR, Carlozzi NE, Hervey-Jumper SL. Front Neurol 10: 212, 2019. PM30930834/PMC6428723

Using PROMIS® to create clinically meaningful profiles of nephrotic syndrome patients

Troost JP, Gipson DS, Carlozzi NE, Reeve BB, Nachman PH, Gbadegesin R, Wang J, Modersitzki F, Massengill S, Mahan JD, Liu Y, Trachtman H, Herreshoff EG, DeWalt DA, Selewski DT. Health Psychol 38(5): 410-421, 2019. PM31045424/PMC6499490

Measuring self-reported cognitive function following traumatic brain injury: Development of the TBI-QOL Executive Function and Cognition-General Concerns Item Banks

Carlozzi NE, Tyner CE, Kisala PA, Boulton AJ, Sherer M, Chiaravalloti N, Tulsky DS. J Head Trauma Rehabil 34(5): 308-325, 2019. PM31498230

How different aspects of motor dysfunction influence day-to-day function in Huntington’s disease

Carlozzi NE, Schilling SG, Boileau NR, Chou KL, Perlmutter JS, Frank S, McCormack MK, Stout JC, Paulsen JS, Lai JS, Dayalu P. Mov Disord 34(12): 1910-1914, 2019. PM31609508/PMC7025393

Understanding health-related quality of life in caregivers of civilians and service members/veterans with traumatic brain injury: Reliability and validity data for the TBI-CareQOL Measurement System

Carlozzi NE, Lange RT, French LM, Sander AM, Ianni PA, Tulsky DS, Miner JA, Kallen MA, Brickell TA. Arch Phys Med Rehabil. 100(4S): S85-S93, 2019. PM29966648/PMC6311445

The development of a new computer adaptive test to evaluate anxiety in caregivers of individuals with traumatic brain injury: TBI-CareQOL Caregiver-Specific Anxiety

Carlozzi NE, Kallen MA, Sander AM, Brickell TA, Lange RT, French LM, Ianni PA, Miner JA, Hanks R. Arch Phys Med Rehabil. 100(4S): S22- S30, 2019. PM29958902/PMC6309947

The development of two new computer adaptive tests to evaluate feelings of loss in caregivers of individuals with traumatic brain injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury

Carlozzi NE, Kallen MA, Ianni PA, Sander AM, Hahn EA, Lange RT, Brickell TA, French LM, Miner JA, Hanks R. Arch Phys Med Rehabil 100(4S): S31-S42, 2019. PM29958904/PMC6309950

The development of a new computer-adaptive test to evaluate strain in caregivers of individuals with traumatic brain injury: TBI-CareQOL Caregiver Strain

Carlozzi NE, Kallen MA, Ianni PA, Hahn EA, French LM, Lange RT, Brickell TA, Hanks R, Sander AM. Arch Phys Med Rehabil 100(4S): S13-S21, 2019. PM29966647/PMC6389439

The TBI-CareQOL Measurement System: Development and preliminary validation of health-related quality of life measures for caregivers of civilians and service members/veterans with traumatic brain injury

Carlozzi NE, Kallen MA, Hanks R, Hahn EA, Brickell TA, Lange RT, French LM, Kratz AL, Tulsky DS, Cella D, Miner JA, Ianni PA, Sander A. Arch Phys Med Rehabil 100(4S): S1-S12, 2019. PM30195987/PMC6456033

The development of a new computer adaptive test to evaluate feelings of being trapped in caregivers of individuals with traumatic brain injury: TBI-CareQOL Feeling Trapped Item Bank

Carlozzi NE, Kallen MA, Hanks R, Kratz AL, Hahn EA, Brickell TA, Lange RT, French LM, Ianni PA, Miner JA, Sander AM. Arch Phys Med Rehabil 100(4S): S43-S51, 2019. PM30075146/PMC6422745

Validation of Neuro-QoL and PROMIS Mental Health patient reported outcome measures in persons with Huntington disease

Carlozzi NE, Goodnight S, Kratz AL, Stout JC, McCormack MK, Paulsen JS, Boileau NR, Cella D, Ready RE. J Huntingtons Dis 8(4): 467-482, 2019. PM31424415

End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning

Carlozzi NE, Boileau NR, Paulsen JS, Perlmutter JS, Lai JS, Hahn EA, McCormack MK, Nance MA, Cella D, Barton SK, Downing NR. J Neurol 266(10): 2406-2422, 2019. PM31190171/PMC6766417

Health-related quality of life in glomerular disease

Canetta PA, Troost JP, Mahoney S, Kogon AJ, Carlozzi NE, Bartosh SM, Cai Y, Davis TK, Fernandez H, Fornoni A, Gbadegesin RA, Herreshoff E, Mahan JD, Nachman PH, Selewski DT, Sethna CB, Srivastava T, Tuttle KR, Wang CS, Falk RJ, Gharavi AG, Gillespie BW, Greenbaum LA, Holzman LB, Kretzler M, Robinson BM, Smoyer WE, Guay-Woodford LM, Reeve B, Gipson DS, CureGN Consortium. Kidney Int  95(5): 1209-1224, 2019. PM30898342 /PMC6743723

National Institutes of Health Toolbox Emotion Battery: Application of summary scores to adults with spinal cord injury, traumatic brain injury, and stroke

Babakhanyan I, Carlozzi NE, McKenna BS, Casaletto KB, Heinemann AW, Heaton RK. Arch Phys Med Rehabil 100(10): 1863-1871, 2019. PM31153854

Development of a person-centered conceptual model of perceived fatigability

Kratz AL, Murphy SL, Braley TJ, Basu N, Kulkarni S, Russell J, Carlozzi NE. (2019). Qual Life Res 28(5): 1337-1347, 2019. PM30604341

A latent content analysis of barriers and supports to healthcare: Perspectives from caregivers of service members with military traumatic brain injury

Carlozzi NE, Lange RT, French LM, Sander AM, Freedman J, Brickell TA. Journal of Head Trauma and Rehabilitation. 33(5): 342-353. 2018. PMID: 29385014; PMC6172008.

Understanding the need for assistance with survey completion in people with Huntington Disease

Hahn EA, Downing NR, Stout JC, Paulsen JS, Ready RE, Goodnight S, Lai J-S, Miner JA, Carlozzi NE. Quality of Life Research. 27(3): 801-810. 2018. PMID: 29214414. PMC5845783

Evaluating Cognition in Individuals with Huntington disease: Neuro-QoL Cognitive Functioning Measures

Lai J-S, Goodnight S, Downing NR, Ready RE, Paulsen JS, Kratz AL, Stout JC, McCormack MK, Cella D, Ross CA, Russell J, Carlozzi NE. Quality of Life Research. 27(3): 811-822. 2018. PMID: 29222609. PMC5845825.

Understanding patient-reported outcome measures in Huntington disease: At what point is cognitive impairment related to poor measurement reliability?

Carlozzi NE, Schilling S, Kratz AL, Paulsen JS, Frank S, Stout JC. Quality of Life Research. 27(10): 2541-2555. 2018. PMID: 29909483; PMC6295362

Suicidal ideation assessment in individuals with premanifest and manifest Huntington disease

Wesson M, Boileau NR, Perlmutter JS, Paulsen JS, Barton SK, McCormack MK, Carlozzi NE. Journal of Huntington Disease. 7(3): 239-249. 2018. PMID: 30056431. PMC6108173

The reliability of end of day and ecological momentary assessments of pain and pain interference in individuals with spinal cord injury

Carlozzi NE, Schilling S, Freedman J, Kalpakjian CZ, Kratz AL. Quality of Life Research. 27(11): 3003-3012. 2018. PMID: 30073468. PMC6196118

Sociocultural Factors Influencing Caregiver Appraisals Following Traumatic Brain Injury

Sander AM, Hanks RA, Kratz AL, Ianni PA, Hahn EA, Tulsky DS, Carlozzi NE. Archives of Physical Medicine and Rehabilitation. 100(4S): 58-64. 2018. PMID: 30365926. PMC6435379.

The TBI-CareQOL Measurement System: Development and validation of health-related quality of life measures for caregivers of civilians and service members/veterans with traumatic brain injury

Carlozzi NE, Kallen MA, Hanks R, Hahn EA, Brickell TA, Lange RT, French LM, Kratz AL,Tulsky DS, Cella D, Miner JA, Ianni PA, Sander AM. Archives of Physical Medicine and Rehabilitation. 100(4S): 1-12. 2018. PMID: 30195987. PMC6456033.

Caring for an individual with mild cognitive impairment: A qualitative perspective of health-related quality of life from caregivers

Carlozzi NE, Sherman CW, Angers K, Belanger MP, Austin AM, Ryan KA.  Aging Ment Health. 22(9): 1190-1198. 2018. PMID: 28699777. PMC6141353.

Novel health information technology tool use by adult patients undergoing hematopietic cell transplantation: Longitudinal quantitative and qualitative patient reported outcomes

Runaas L, Hoodin F, Munaco A, Fauer A, Sankaran R, Churay T, Mohammed S, Seyedsalehi S, Chappell G, Carlozzi NE, Fetters MD, Kentor R, McDiarmid L, Brookshire K, Warfield C, Byrd M, Kaziunas S, Maher M, Magenau J, An L, Cohn A, Hanauer D, Choi SW. JCO Clin Cancer Inform. 2: 1-12. 2018. PMID: 30652535. PMC6873938.

Relationships among apathy, health-related quality of life and function in Huntington’s disease

Fritz NE, Boileau NR, Stout JC, Ready RE, Perlmutter JS, Paulsen JS, Quaid K, Carton S, McCormack MK, Perlman SL, Carlozzi NE. J Neuropsychiatry Clin Neurosci. 30(3): 194-201. 2018. PMID: 29558861. PMC6081241

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease

Carlozzi NE, Boileau NR, Perlmutter JS, Chou KL, Stout JC, Paulsen JS, McCormack MK, Cella D, Nance MA, Lai L-S,  Dayalu P. J Neurol. 265(6): 1443-1453. 2018. PMID: 29687215. PMC5992091

Understanding how chorea affects health-related quality of life in Huntington disease: An online survey of patients and caregivers in the United States

Thorley EM, Iyer RG, Wicks P, Curran C, Gandhi SK, Abler V, Anderson KE,  Carlozzi NE. Patient. 11(5): 547-559. 2018. PMID: 29750428. PMC6132452

A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE End of Life Planning

Carlozzi, N.E., Hahn, E.A., Frank, S., Perlmutter, J.S., Downing, N.D., Barton, S., Nance, M.A., & Schilling, S.G. (2018). Journal of Neurology, 265, 98–107. PMID: 29143208. PMC: PMC5762414.

Diagnosis of minimal hepatic encaphalopathy: A systematic review of point-of-care diagnostic tests

Tapper, E.B., Parikh, N.D., Waljee, A.K., Volk, M., Carlozzi, N.E., Lok, A.S. (2018). American Journal of Gastroenterology, 113(4), 529–539. PMID: 2953339; PMC: Pending

The Physical Activity Daily (PAD) Trial: The rationale and design of a randomized controlled trial evaluating an internet walking program to improve maximal walking distance among patients with peripheral arterial disease. Contemporary Clinical Trials, 67, 23-30

Kumar A.M., Lyden A.K., Carlozzi, N.E., Sen A., Richardson C.R., Jackson E.A. (2018). PMID: 29274894; PMC: PMC5944605

Classification of Huntington’s disease using acoustic and lexical features

Perez M, Jin W, Le D, Carlozzi NE, Dayalu P, Roberts A,  Mower Provost E. Interspeech. 2018: 1898-1902. 2018. PMID: 33241056. PMC7685291

Rating scales and performance-based measures for functional ability in Huntington disease

Mestre T, Busse M, Davis A, Quinn L, Rodrigues F, Burgunder J-M, Carlozzi NE, Walker F, Ho A, Sampaio C, Goetz C, Cubo E, Martinez-Martin P, Stebbins G. Mov Disord Clin Pract. 5(4): 361-372. 2018. PMID: 29570848. PMC6174516

Patient-Reported Outcome Measures in Huntington Disease: Neuro-QoL Social Functioning

Carlozzi, N.E., Hahn, E.A., Goodnight, S.M., Kratz, A.L., Paulsen, J.S., Stout, J.C., Frank, S., Miner, J.A., Cella, D., Gershon, R.C., Schilling, S.G., Ready, R.E. (2018). PMID: 28557480; PMC: PMC5708162

Factors associated with end of life planning in Huntington disease

Downing NR, Goodnight S, Chae S, Perlmutter JS, McCormack M, Hahn EA, Barton SK, Carlozzi NE. Am J Hosp Palliat Care. 35(3): 440-447. 2018. PMID: 28655280. PMC6074046

Factors Associated With End-of-Life Planning in Huntington Disease

Downing, N. R., Goodnight, S., Chae, S., Perlmutter, J. S., McCormack, M., Hahn, E., Barton, S. K.,Carlozzi, N.E.. (2018). 35(3), 440–447.

A Latent Content Analysis of Barriers and Supports to Healthcare: Perspectives From Caregivers of Service Members and Veterans With Military-Related Traumatic Brain Injury

Carlozzi, N. E., Lange, R. T., French, L. M., Sander, A. M., Freedman, J., & Brickell, T. A. (2018). J Head Trauma Rehabil

A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning

Carlozzi, N. E., Hahn, E. A., Frank, S. A., Perlmutter, J. S., Downing, N. D., McCormack, M. K., Barton, S., Nance, M. A., Schilling, S. G. (2018). J Neurol, 265(1), 98–107.

Health and functional literacy in physical rehabilitation patients

Hahn EA, Magasi SR, Carlozzi NE, Tulsky DS, Wong A, Garcia SF, Lai J-S, Hammel J, Miskovic A, Jerosek S, Goldsmith A, Nitsch K, Heinemann AW. Health Literacy Research and Practice, 1(2): e71-e85. 2017. PMID: 31294252. PMC6607848.

Responsiveness of the PROMIS® measures to changes in disease status among pediatric Nephrotic Syndrome patients: a Midwest Pediatric Nephrology Consortium study

Selewski, D.T., Troost, J.P., Cummings, D., Massengill, S.F., Gbadegesin, R.A., Greenbaum, L.A., Shatat, I.F., Cai, Y., Kapur, G., Hebert, D., Somers, M.J., Trachtman, H., Pais, P., Seifert, M.E., Goebel, J., Sethna, C.B., Mahan, J.D., Gross, H.E., Herreshoff, E., Liu, Y., Carlozzi, N.E., Reeve, B.B., DeWalt, D.A., & Gipson, D.S. (2017). Health and Quality of Life Outcomes, 15(1), 166. PMID: 28835233; PMC5569504

Patient-reported outcomes in glomerular disease

Selewski, D. T., Thompson, A., Kovacs, S., Papadopoulos, E. J., Carlozzi, N. E., Trachtman, H., Troost, J. P., Merkel, P. A., & Gipson, D. S. (2017). Clinical Journal of the American Society of Nephrology, 12(1), 140–148. PMID: 27259977; PMC: PMC5220669

Patient-Centered Outcome Measures to Assess Functioning in Randomized Controlled Trials of Low Vision Rehabilitation: A Review

Ehrlich, J. R., Spaeth, G., Carlozzi, N. E., Lee, P. P. (2017). The Patient: Patient–Centered Outcomes Research, 10(1), 39–49. PMID: 27495171; PMC: Pending

Revealing health-related quality of life components in children with neonatal brachial plexus palsy

Chang, K. W-C., Austin, A., Yeaman, J., Phillips, L., Kratz, A., Yang, L., & Carlozzi, N.E. (2017). Physical Medicine and Rehabilitation, 9(4), 383–391. PMID: 27519824

Patient-Reported Outcomes in Huntington Disease: Neuro-QOL and HDQLIFE Physical Function Measures

Carlozzi, N.E., Ready, R.E., Frank, S., Cella, D., Hahn, E.A., Goodnight, S.M., Schilling, S.G., Boileau, N.R., & Dayalu, P. (2017). Movement Disorders, 32(7), 1096–1102.  PMID: 28556412; PMC: PMC5605785

Validation of the NIH Toolbox in individuals with neurological disorders

Carlozzi, N.E., Goodnight, S., Casaletto, K.B., Goldsmith, A., Heaton, R.K., Wong, A.W.K., Baum, C.M., Gershon, R., Heinemann, A.W., & Tulsky, D.S. (2017). Archives of Clinical Neuropsychology, 32(5), 555–573. PMID: 28334392 PMC: PMC5860275

Validation and clinical utility of the executive function performance test in persons with traumatic brain injury

Baum, C. M., Wolf, T. J., Wong, A. W. K., Checn, C. H., Walker, K., Young, A. C., Carlozzi, N. E., Tulsky, D. S., Heaton, R. K., & Heinemann, A. W. (2017). Neuropsychological Rehabilitation, 27(5), 603–617. PMID: 27150506, PMC: Pending

Uncorrected versus demographically-corrected scores on the NIH Toolbox Cognition Battery: What is the difference?

Nitsch, K. P., Casaletto, K. B., Tulsky, D. S., Heinemann, A. W., Carlozzi, N. E., & Heaton, R. K. (2017). Rehabilitation Psychology, 62(4), 485–495. PMID: 29265869; PMC: Pending.

Cognition among community-dwelling individuals with spinal cord injury

Cohen, M.L., Tulsky, D.S., Holdnack, J.A., Carlozzi, N.E., Wong, A., Magasi, S., Heaton, R.K., & Heinemann, A.W.  (2017). Rehabilitation Psychology, 62(4), 425–434. PMID: 29265863; PMC: PMC5745049

Reliability and validity of the HD-PRO-TriadTM, a health-related quality of life measure designed to assess the symptom triad of Huntington Disease

Boileau, N.R., Stout, J.C., Paulsen, J.S., Cella, D., McCormack, M.K., Nance, M.A., Frank, S., Lai, J.-S., & Carlozzi, N.E. (2017). Journal of Huntington’s Disease, 6(3), 201–215. PMID: 28968239

Using the NIH Toolbox Cognition Battery (NIHTB-CB) in individuals with traumatic brain injury

Tulsky, D.S., Carlozzi, N.E., Holdnack, J., Heaton, R.K., Wong, A., Baum, C., Goldsmith, A., & Heinemann. A.W.  (2017). Rehabilitation Psychology, 62(4), 413–424. PMID: 29265862; PMC: Pending.

Factor structure of the NIH Toolbox Cognition Battery in individuals with acquired brain injury

Tulsky, D.S., Holdnack, J., Cohen, M., Heaton, R., Carlozzi, N.E., Wong, A., Boulton, A., & Heinemann, A.W. (2017). Rehabilitation Psychology, 62(4), 435–442. PMID: 29265864; PMC: PMC5745053.

NephCure accelerating cures institute: A multidisciplinary consortium to improve care for nephrotic syndrome

Gipson, D.S., Selewski, D.T., Massengill, S.F., Modes, M.M., Desmond, H., Lee, L., Kamil, E., Elliott, M.R., Adler, S.G., Oh, G., Lafayette, R.A., Gipson, P.E., Sinha, A., Bagga, A., Pesenson, A., Courtlandt, C., Spino, C., Eikstadt, R., Pitter, R., Attalla, S., Waldo, A., Winneker, R., Carlozzi, N.E., Troost, J.P., Smokler, I., & Stone, M.  (2017). Kidney International Reports, 3(2), 439–446 PMID: 29725648; PMC: PMC5932133

Motor-Free composites from the NIH Toolbox Cognition Battery for people with disabilities

Carlozzi, N.E., Goodnight, S., Umlauf, A., Heaton, R.K., Heinemann, A.W., Schalet, B.D., Gershon, R.C., & Tulsky, D.S. (2017). Rehabilitation Psychology, 62(4), 464–473. PMID: 29265867; PMC: Pending

Construct validity of the NIH Toolbox Cognition Battery in individuals with stroke

Carlozzi, N. E., Tulsky, D.S., Wolf, T., Goodnight, S., Heaton, R., Casaletto, K.B., Wong, A., Baum, C., Gershon, R., & Heinemann, A. (2017). Rehabilitation Psychology, 62(4), 443–454. PMID: 29265865.

Relationships between environmental factors and participation in adults with traumatic brain injury, stroke, and spinal cord injury: A cross-sectional multi-center study

Wong A, Ng S, Dashner J, Baum C, Hammel J, Magasi S, Lai J-S, Carlozzi NE, Tulsky DS, Miskovic A, Goldsmith A, Heinemann A. Qual Life Res. 26(10): 2633-2645. 2017. PMID: 28444554

Reliability and Validity of the HD-PRO-TriadTM, a Health-Related Quality of Life Measure Designed to Assess the Symptom Triad of Huntington’s Disease

Boileau, N. R., Stout, J. C., Paulsen, J. S., Cella, D., McCormack, M. K., Nance, M. A., Frank, S., Lai, J. S., Carlozzi, N. E. (2017). J Huntingtons Dis, 6(3), 201–215.

Speech Perceptions and Health-Related Quality of Life Among Children With Cleft Lip and Palate

Bickham, R.S., Ranganathan, K., Wombacher, N.R., Shapiro, D.N., Carlozzi, N.E., Baker, M.K., Vercler, C.J., Warschausky, S.A., Buchman, S.R., & Waljee, J.F. (2017). Journal of Craniofacial Surgery, 28 (5), 1264–1268. PMID:28665843

TBI-QOL: Development and calibration of item banks to measure patient reported outcomes following traumatic brain injury

Tulsky, D. S., Kisala, P., Victorson, D., Carlozzi, N. E., Bushnik, T., Sherer, M., Choi, S., Heinemann, A., Chiaravalloti, N., Sander, A., Englander, J., Hanks, R., Kolakowsky-Hayner, S., Roth, E., Gershon, R., Wood, K., & Cella, D. (2016). Journal of Head Trauma and Rehabilitation, 31(1), 40-51. PMID: 25931184; PMC: PMC4697960

Hand function and appearance following reconstruction for congenital hand differences: A qualitative analysis of children and parents

Kelley, B.P., Franzblau, L.E., Chung, K.C., Carlozzi, N.E., & Waljee, J.F.  (2016).  Plastic and Reconstructive Surgery, 138(1), 73e-81e. PMID: 27348688; PMC: Pending

Are patient-reported outcomes correlated with clinical outcomes after surgery?: A population-based study

Waljee, J.F., Ghaferi, A., Cassidy, R., Varban, O., Finks, J., Chung, K.C., Carlozzi, N.E., & Dimick, (2016). Annals of Surgery, 264(4), 682-689.PMID: 27611481; PMC: Pending

The feasibility and validity of PROMIS: A novel measure of quality of life among children with cleft lip and palate

Ranganathan, K., Shapiro, D., Carlozzi, N. E., Michaella, B., Vercler, C. J., Kasten, S., Warschausky, S. A., Buchman, S. R., & Waljee, J. F.  (2016). Plastic and Reconstructive Surgery, 138(4), 675e-81e. PMID: 27673538; PMC: Pending

Measuring environmental factors: Unique and overlapping ICF coverage of five instruments

Heinemann, A. W., Miskovic, A., Semick, P., Wong, A., Dashner, J., Baum, C., Hammel, J., Tulsky, D. S., Garcia, S., Jerousek, S., Lai, J.-S., Carlozzi, N. E., & Gray, D. B.  (2016).  Archives of Physical Medicine and Rehabilitation, 97(12), 2113-2122. PMID: 27343347; PMC: Pending

Using the ICF’s environmental factors framework to develop an item bank measuring built and natural environmental features affecting persons with disabilities

Heinemann, A. W., Lai, J.-S., Wong, A., Dashner, J., Magasi, S., Hahn, E.A., Carlozzi, N.E., Tulsky, D.S., Jerousek, S., Semick, P., Miskovic, A., & Gray, D.B.  (2016).  Quality of Life Research, 25(11), 2775-2786. PMID: 27207589; PMC: Pending

Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury

Carlozzi, N. E., Brickell, T. A., French, L.M., Sander, A., Kratz, A.L., Tulsky, D. S., Chiaravalloti, N. D., Hahn, E.A., Kallen, M., Austin, A. M., Miner, J.A., & Lange, R. T.  (2016). Journal of Rehabilitation Research & Development, 53(6), 669-680. PMID: 27997672; PMC180206

HDQLIFE: The development of two new computer adaptive tests for use in Huntington disease, Speech Difficulties and Swallowing Difficulties

Carlozzi, N. E., Schilling, S.G., Lai, J.-S., Perlmutter, J.S., Nance, M.A., Waljee, J.F., Miner, J.A., Barton, S.K., Goodnight, S.M., & Dayalu, P. (2016). Quality of Life Research, 25(10), 2417-2427. PMID: 27038054; : PMC: PMC5011441

The development of a new computer adaptive test to evaluate chorea in Huntington Disease: HDQLIFE Chorea

Carlozzi, N.E., Downing, N.R., Schilling, S.G., Lai J.-S., Goodnight, S.M., Miner, J.A., & Frank, S. (2016).  Quality of Life Research, 25(10), 2429-2439. PMID: 27141833; PMC: PMC5011448

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient reported outcomes measurement system)

Carlozzi, N.E., Downing, N.R., McCormack, M.K., Schilling, S.G., Perlmutter, J.S., Hahn, E. A., Lai, J.-S., Frank, S., Quaid, K.A., Paulsen, J. S., Cella, D., Goodnight, S.M., Miner, J.A., & Nance, M.A.  (2016) Quality of Life Research, 25(10), 2403-2415. PMID: 27393121; PMC: PMC5011453

HDQLIFE: Development and assessment of health-related quality of life in Huntington disease (HD)

Carlozzi, N.E., Schilling, S.G., Lai J.-S., Paulsen, J.S., Hahn, E.A.,Perlmutter, J.S., Ross, C.A., Downing, N.R., Kratz, A.L., McCormack, M.K., Nance, M.A., Quaid, K.A., Stout, J.C., Gershon, R.C., Ready, R.E., Miner, J.A., Barton, S.K., Perlman, S.L.,Rao, S.M., Frank, S., Shoulson, I., Marin, H., Geschwind, M.D., Dayalu, P., Goodnight, S.M., & Cella, D.^3,4,8  (2016). Quality of Life Research, 25(10), 2441-2455. PMID: 27522213; PMC: Pending

Developing an item bank to measure economic quality of life for individuals with disabilities

Tulsky, D. S., Kisala, P., Lai, J., Carlozzi, N. E., Hammel, J., & Heinemann, A. W.  (2015)  Archives of Physical Medicine and Rehabilitation, 96(4), 604-613. PMID: 24736400; PMC: Pending

Environmental Factor Item Development for Persons with Stroke, Traumatic Brain Injury and Spinal Cord Injury

Heinemann, A. W., Magasi, S., Hammel J., Carlozzi, N. E., Garcia, S. F., Hahn, E. A., Lai, J., Tulsky, D. S., Gray, D. B., Hollingsworth, H., & Jerousek, S.  (2015) Archives of Physical Medicine and Rehabilitation, 96(4), 589-95. PMID: 25813890

Environmental barriers and supports to everyday participation: A qualitative insider perspective from people with disabilities

Hammel, J., Magasi, S., Heinemann, A. W., Gray, D. B., Stark, S., Kisala, P., Carlozzi, N. E., Tulsky, D. S., Garcia, S. F., & Hahn, E. A.  (2015).  Archives of Physical Medicine and Rehabilitation, 96, 578-588. Recipient of best paper award for the National Association of Rehabilitation Research and Training Centers (NARRTC). PMID: 25813890; PMC: Pending

Coping with congenital hand differences

Franzblau, L. E., Chung, K. C., Carlozzi, N. E., Chin, A. Y. T., Nellans, K. W., & Waljee, J. F.  (2015).  Plastic and Reconstructive Surgery, 135(4), 1067-75. PMID: 27348688; PMC: Pending

Health-Related Quality of Life in Caregivers of individuals with traumatic brain injury: Development of a Conceptual Model

Carlozzi, N. E., Kratz, A., Austin, A., Sander, A., Chiaravalloti, N.D., Brickell, T., Lange, Austin, A., Miner, J., & Tulsky, D. S. (2015).  Archives of Physical Medicine and Rehabilitation, 96, 105-113.PMID: 25239281; PMC: PMC4276526

An examination of the Wechsler Adult Intelligence Scales, Fourth Edition (WAIS-IV) in individuals with complicated mild, moderate and severe traumatic brain injury (TBI)

Carlozzi, N. E., Kirsch, N. L., Kisala, P.A., & Tulsky, D. S.  (2015).  The Clinical Neuropsychologist, 29(1), 21-37. PMID: 25646823; PMC: Pending

Applying the Patient-Reported Outcomes Measurement Information System to assess upper extremity function among children with congenital hand differences. Plastic Reconstructive Surgery

Waljee, J.F., Carlozzi, N.E., Franzblau, L.E., Zhong, L., & Chung, K.C. (2015).  136(2), 200e-207e. PMID: 26218394; PMC: PMC4798231

Validity of the 12-item World Health Organization Assessment Schedule 2.0 (WHODAS 2.0) in individuals with Huntington disease (HD)

Carlozzi, N. E., Kratz, A. L., Downing, N. R., Goodnight, S., Miner, J. A., Migliore, N., & Paulsen, J. S.  (2015). Quality of Life Research, 24(8), 1963-71. PMID: 25636661; PMC: PMC4497948

The NIH Toolbox Pattern Comparison Processing Speed Test: Normative Data

Carlozzi, N., Beaumont, J., Tulsky, D. S., & Gershon, R.  (2015). Archives of Clinical Neuropsychology, 30(5), 359-368. PMID: 26025230; PMC: PMC4542749

Variation in patient-reported outcomes across hospitals following surgery

Waljee, J.F., Ghaferi, A., Finks, J.F., Cassidy, R., Varban, O., Carlin, A., Carlozzi, N.E., & Dimick, J. (2015). Medical Care, 53(11), 960-966. PMID: 26465124; PMC: Pending

Variation in patient-reported outcomes across hospitals following surgery

Waljee, J.F., Ghaferi, A., Finks, J.F., Cassidy, R., Varban, O., Carlin, A., Carlozzi, N.E., & Dimick, J. (2015). Journal of Head Trauma and Rehabilitation, 31(1), 40-51. PMID: 25931184; PMC: PMC4697960

Lack of physician- patient communication is a key factor associated with malpractice litigation in neonatal brachial plexus palsy

Domino, J., McGovern, C., Chang, K. W-C., Carlozzi, N. E., & Yang, L. S.  (2014).  Journal of Neurosurgery: Pediatrics for Review, 13(2), 238-242. PMID: 24329158; PMC: Pending

Identifying and Classifying Motor, Emotional-Behavioral, and Cognitive Deficits that Comprise the Triad of Huntington’s Disease Symptoms from the Patient, Caregiver, and Provider Perspectives

Victorson, D., Carlozzi, N. E., Frank, S., Beaumont, J.L., Cheng, W., Gorin, B., Duh, M. S., Samuelson, D., Tulsky, D.S., Gutierrez, S., Nowinski, C., Mueller, A., Shen, V., Sung, V.  (2014). Tremor and Other Hyperkinetic Movements,4, 224. PMID: 24757585; PMC: PMC3986490

HD-PRO-TRIAD™ Validation: a Patient-Reported Instrument for the Symptom Triad of Huntington Disease

Carlozzi, N. E., Beaumont, J.L., Victorson, D., Sung, V., Cheng, W., Gorin, B., Duh, M. S., Samuelson, D., Tulsky, D. S., Gutierrez, S., Nowinski, C., Mueller, A., Shen, V., & Frank, S.  (2014). Tremor and Other Hyperkinetic Movements, 4, 223. PMID: 24761312, PMC: PMC3990832

NIH Toolbox Cognition Battery (NIHTB-CB): The NIH Toolbox Pattern Comparison Processing Speed Test

Carlozzi, N., Tulsky, D. S., Chiaravalloti, N. D., Beaumont, J., Weintraub, S., Conway, K., & Gershon, R. (2014). Journal of the International Neuropsychological Society, 20(6), 630-641. PMID: 24960594; PMC PMC4424947

The Cognition battery of the NIH Toolbox for Assessment of Neurological and Behavioral Function: Validation in an adult sample

Weintraub, S., Dikmen, S. S., Heaton, R. K., Tulsky, D. S., Zelazo, P.D., Slotkin, J., Carlozzi, N. E. et al. (2014).  Journal of the International Neuropsychological Society, 20(6), 567-578. PMID: 24959840; PMC: PMC4103959

NIH Toolbox Cognition Battery: List Sorting Test to measure working memory

Tulsky, D. S., Carlozzi, N. E., Chiaravalloti, N. D., Beaumont, J.,  Kisala, P. A., Mungas, D., Conway, K., & Gershon R.  (2014).  Journal of the International Neuropsychological Society, 20(6), 599-610. PMID: 24959983; PMC: PMC4426848

Understanding the outcomes measures used in Huntington disease pharmacological trials: A systematic review

Carlozzi, N. E., Miciura, A., Migliore, N. & Dayalu, P.  (2014) Journal of Huntington’s Disease, 3(3), 233-252. PMID: 25300328; PMC: PMC4217648

Identification of Health-Related Quality of Life (HRQOL) Issues Relevant to Individuals with HD

Carlozzi, N. E., & Tulsky, D. S. (2013) The Journal of Health Psychology, 18(2), 212&ndash225. PMID; 22427174; PMC: PMC3643297

NIH Toolbox Cognitive Function Battery (CFB): Measuring Working Memory

Tulsky, D. S., Carlozzi, N. E., Chevalier, N., Espy, K., Beaumont, J., & Mungas, D. (2013). Monographs of the Society For Research In Child Development, 78(4), 70–87. PMID: 23952203; PMC: PMC4427028.

NIH Toolbox Cognitive Function Battery (CFB): Measuring Processing Speed

Carlozzi, N. E., Tulsky, D. S., Kail, R. V., & Beaumont, J. (2013). Monographs of the Society For Research In Child Development, 78(4), 88–102. PMID: 23952204; PMC: PMC4425122

NIH Toolbox Cognitive Function Battery (CFB): Introduction and Pediatric Data

Weintraub, S., Zelazo, P.D., Bauer, P. J., Wallner-Allen, K., Dikmen, S. S., Heaton, R. K., Tulsky, D. S., Slotkin, J., Blitz, D., Carlozzi, N. E., Havlik, R., Beaumont, J. L., Mungas, D., Manly, J. J., Nowinski, C., Borosh, B., & Gershon, R.  (2013). Monographs of the Society For Research In Child Development, 78(4), 1–15. PMID: 23952199; PMC: PMC3954750

Using virtual reality driving simulators in person with spinal cord injury: three screen display versus head mounted display

Carlozzi, N. E., Tulsky, D. S., & Gade, V. (2013) Disability and Rehabilitation: Assistive Technology, 8(2), 176–180. PMID: 22775982

Cognition assessment using the NIH Toolbox

Weintraub, S., Dikmen, S., Heaton, R., Tulsky, D. S., Bauer, P., Zelazo, P. D., Carlozzi, N. E., Slotkin, J., Blitz, D., et al. (2013). Neurology, 11(3), S54–64. PMID: 23479546;  PMC3662346

Impact of blood pressure dysregulation on health-related quality of life in persons with spinal cord injury: Development of a conceptual model

Carlozzi, N. E., Fyffe, D., Morin, K. G., Byrne, R., Tulsky, D. S., Victorson, D., Lai, J-S., & Wecht, J. M.  (2013). Archives of Physical Medicine and Rehabilitation, 94(9), 1721–30. PMID: 23499779; PMC: PMC4342994

Memory functioning in individuals with traumatic brain injury: An examination of the Wechsler Memory Scales- Fourth Edition (WMS-IV)

Carlozzi, N. E., Grech, J., & Tulsky, D. S. (2013). Journal of Clinical and Experimental Neuropsychology, 35(9), 906–914. PMID: 24033318; PMC: Pending

A Review of Quality of Life after Predictive Testing for and Earlier Identification of Neurodegenerative Diseases

Paulsen, J.S., Nance, M., Kim, J., Carlozzi, N.E., Panegyres, P.K., Erwin, C., Goh, A., McCusker, E., Williams, J.K, & the PREDICT-HD Investigators of the Huntington Study Group. (2013). Progress in Neurobiology, 110, 2–28. PMID: 24036231; PMC: PMC3833259

Measurement of social participation outcomes in the rehabilitation of veterans with traumatic brain injury

Stiers, W., Carlozzi, N. E., Cernich, A., Velozo, C., Pape, T., Hart, T., Gulliver, S., Rogers, M., Villarreal, E., Gordon, S., Gordon, W., & Whiteneck, G. (2012). Journal of Rehabilitation Research and Development, 49(1), 139–154. PMID: 22492344; PMC: Pending

Cognitive domains that predict time to diagnosis in prodromal Huntington disease

Harrington, D., Smith, M., Xhang, Y., Carlozzi, N. E., Paulsen, J. S., and the Predict-HD Investigators of the Huntington Study Group. (2012). The Journal of Neurology, Neurosurgery, and Psychiatry, 83(6), 612–619. PMID: 22451099; PMC: PMC3812822

Neurocognitive signs in prodromal Huntington’s disease

Stout, J. C., Queller, S., Solomon, A. C., Whitlock, K. B., Campbell, J. C., Carlozzi, N. E., Duff, K., Beglinger, L. J., Langbehn, D. R., Aylward, E. H., Johnson, S. A., Biglan, K. M., Paulsen, J. S. and the Predict-HD investigators and coordinators of the Huntington Study Group (HSG). (2011). Neuropsychology, 25(1), 1–14. PMID: 20919768; PMC: PMC3017660

The Trail Making Test in prodromal Huntington disease: Contributors of disease progression to test performance

O’Rourke, J. F., Beglinger, L. J., Smith, M. M., Mills, J., Moser, D. J., Rowe, K. C., Langbehn, D. R., Duff, K., Stout, J. C., Harrington, D. L., Carlozzi, N. E., Paulsen, J. S., and the PREDICT-HD Investigators of the Huntington Study Group. (2011). Journal of Clinical and Experimental Neuropsychology, 7, 1–13.  PMID: 21302170; PMC: PMC3159183

Memory problems in posttraumatic stress disorder: Objective findings versus subjective complaints

Carlozzi, N. E., Reese, C., & Thomas, D. G. (2011). Stress and Health, 27(3), e287–e293.

Estimating premorbid IQ in the prodromal phase of neurodegenerative disease

Carlozzi, N. E., Stout, J. C., Mills, J. A., Duff, K., Beglinger, L. J., Whitlock, K. B., Solomon, A. C., Queller, S., Langbehn, D. R., Johnson, S. A., Harrington, D., Westervelt, H., Ross, C. A., Aylward, E. H., Paulsen, J. S. and the Predict-HD investigators of the Huntington Study Group. (2011). The Clinical Neuropsychologist, 25(5), 757–777. PMID: 21660882; PMC: PMC3159182

Traumatic Brain Injury (TBI) Patient Reported Outcome Measure: Identification of Issues Relevant to Individuals with TBI

Carlozzi, N. E., Tulsky, D. S., & Kisala, P. (2011). Archives of Physical Medicine and Rehabilitation, 92(10, Suppl 1), S52–S60. PMID: 21958923; PMC: Pending

Advances in Outcomes Measurement in Rehabilitation Medicine: Current Initiatives from the National Institutes of Health and the National Institute on Disability and Rehabilitation Research

Tulsky, D.S., Carlozzi, N. E. & Cella, D.F. (2011). Archives of Physical Medicine and Rehabilitation, 92(10, Suppl 1), S1–S6. PMID: 21958917; PMC: PMC4425123

Personality and reaction time after sleep deprivation

Carlozzi, N. E., Horner, M. D., Kose, A., Yamanaka, K., Misory, A., Mu, Q., Nahas, Z., Hill, S. A., & George, M. S.  (2010). Current Psychology, 29(1), 24–33

“Frontal” behaviors before the diagnosis Huntington’s disease and their relationship to markers of disease progression: Evidence of early lack of awareness

Duff, K., Paulsen, J. S., Beglinger, L. J., Langbehn, D. R., Wang, C., Stout, J. C., Ross, C. A., Aylward, E., Carlozzi, N. E., Queller, S., and the Predict-HD Investigators of the Huntington Study Group. (2010) The Journal of Neuropsychiatry and Clinical Neurosciences, 22(2), 196–207. PMID: 20463114; PMC: PMC2871328

Motor abnormalities in pre-manifest persons with Huntington’s disease: The Predict-HD study

Biglan, K. M., Ross, C. A., Langbehn, D. R., Aylward, E., Stout, J. C., Queller, S., Carlozzi, N. E., Duff, K., Beglinger, L.J., Paulsen, J. S., and the Predict-HD Investigators of the Huntington Study Group. (2009). Movement Disorders, 24(12), 1763–72. PMID: 19562761; PMC: PMC3048804

The utility of the transverse patterning task as a measure of configural learning in a college sample immediate memory

Carlozzi, N. E., & Thomas, D. G.  (2008).  Applied Neuropsychology, 15(1), 54–60.  PMID: 1844394; PMC: Pending

Reliability and validity of the SCL-90-R crime-related PTSD scale

Carlozzi, N. E., & Long, P. J. (2008). Journal of Interpersonal Violence, 23(9). 1162-1176. PMID 1829240; PMC: Pending

Factor analysis of the Repeatable Battery for Assessment of Neuropsychological Status

Carlozzi, N. E., Horner, M. D., Yang, C., & Tilley, B. C. (2008) Applied Neuropsychology, 15(4), 1–6. PMID: 19023744; PMC: Pending

Obsessive and Compulsive Symptoms in Pre-Diagnosed Huntington’s Disease

Beglinger, L. J., Paulsen, J. S., Watson, D. B., Wang, C., Duff, K., Langbehn, D. R., Moser, D. J., Paulson, H. L., Aylward, E. H., Carlozzi, N. E., Queller, S., Stout, J. C., & the PREDICT-HD Investigators of the Huntington Study Group.  (2008). The Journal of Clinical Psychiatry, 69(11), 1758–65.  PMID: 19012814; PMC: PMC3658314

CSA, PTSS and gender: Impact of trauma definition and frequency on findings

Carlozzi, N. E., & Long, P. J. (2008) Journal of Childhood and Adolescent Trauma, 1(4), 273–286.

Preliminary examination of progression of Alzheimer’s disease in a rural Southern African American cohort

Wagner, M. T., Wymer, J., Carlozzi, N. E., Bachman, D., & Mintzer, J.  (2007).  Archives of Clinical Neuropsychology, 22(3), 405-414.  PMID: 17296283; PMC: Pending

Convergent and divergent validity of the Gordon Diagnostic System in adults

Carlozzi, N. E. & Horner, M. D. (2007). Archives of Clinical Neuropsychology, 22 (1), 37-44. PMID: 17123776; PMC: Pending

Distinguishing ADHD from juvenile bipolar disorder: A guide for primary care PAs

Compton, K., Taylor, L.A., Carlozzi, N.E., Fortson, B., Bushardt, R., Askins, D.G., & Barkley, R.  (2006). Journal of the American Academy of Physician Assistants, 19(12), 46-48. PMID: 17243260