LBD Resources
Two women watch an online video

Support Groups, educational videos and at-home exercise programs.
LBD Educational Videos

Are you interested in viewing LBD educational videos? 
Review presentations from national leaders in LBD from our YouTube playlist.

Our first playlist video is featured below.
LBD Informational Download

One page document on Lewy body dementia

Online Support Groups
LBDA Care Partner Facebook Support Group

A place to provide support and guidance as well as share information and resources. Membership is limited to care partners of those living with Lewy body dementia.

Living with Lewy Facebook Support Group

A place to provide support and guidance as well as share information and resources. Membership is limited to those living with Lewy body dementia whether diagnosed or seeking a diagnosis. This group also offers a weekly virtual Zoom based support group.

Living Together with Lewy Facebook Support Group

Living Together with Lewy is an LBDA-sponsored Facebook support group for those living with Lewy body dementia (LBD) and their care partners. The goal of this group is to meet the needs of people who are newly diagnosed with LBD, those who have early symptoms of LBD, and those who anticipate a diagnosis of LBD.

In addition to providing understanding and support to one another, members focus on topics such as maintaining independence, collaborating on care decisions, and promoting living well despite LBD. Both people living with LBD and their care partners are encouraged to join and unite into one group with mutual respect and shared insights.

LBD Caring Spouses

An internet discussion forum support group for those whose husband or wife is living with one of the Lewy body disorders: Dementia with Lewy bodies (DLB) or Parkinson's Disease Dementia (PDD).

at-home exercise programs

Many resources are offered free of charge for those interested in at-home exercise programs. While these programs are aimed at people living with Parkinson’s disease, many who experience the motor difficulties associated with Lewy body dementia will benefit.
Michigan Parkinson Foundation

The Michigan Parkinson Foundation offers both a power movement class and an adapted yoga class virtually for individuals with Parkinson’s.

American Parkinson’s Disease Association’s Greater St. Louis Chapter’s YouTube channel

This channel can serve as your home base for online PD exercise since it hosts many pre-recorded classes you can watch and follow. Archived classes feature tai chi, yoga, interval training, kickboxing, chair exercises, and more. Additional classes will be added over the next few days and weeks, so keep checking back.

Dance for PD, administered by the Mark Morris Dance Group

This group offers specialized dance classes to people with Parkinson’s, their families, friends, and care partners, typically held in person in eight locations around New York City. Since the in-person classes have been suspended due to the COVID-19 outbreak, Dance for PD is offering free live classes (via Zoom) and a multitude of archived classes online for free. Check out the schedule and links for the live online classes, as well as the archived classes.

The Jamestown, New York YMCA - Part 1

The Jamestown, New York YMCA has two short instructional online videos demonstrating Moving for Better Balance, a fall prevention program (Part I and Part II). Parts I and II take approximately 15 minutes if done together.

The Jamestown, New York YMCA - Part II

The Jamestown, New York YMCA has two short instructional online videos demonstrating Moving for Better Balance, a fall prevention program (Part I and Part II). Parts I and II take approximately 15 minutes if done together.

Brain Grant Foundation

This webpage contains seven Parkinson’s exercise videos, including a warm-up, lunges, tai chi, aerobics and agility, boxing, Parkinson’s boot camp, Pilates and yoga. Note: to access the videos you must click on ‘Read More,’ then scroll down on the subsequent page to find and start the video.

Northwest Parkinson’s Foundation Live Streamed Yoga

Online streaming (and archived) 45-minute yoga classes, taught by Renee Le Verrier, a certified yoga instructor and a person with Parkinson’s, focused on areas particular to Parkinson’s. Supports: chair, wall, cushion, block, blanket - aid balance and reduce the fear of falling.

Classes include step-by-step movements with variations, cues on how, what, and where to notice yoga’s effects, relaxation techniques, tips to try, and ways to apply yoga to everyday activities.

Rock Steady Boxing Exercise Videos

This archive contains over 50 short exercise videos in four categories: warm-up, workout, CORE, and stretch. You pick one video from each category, and by the time you’ve done all the exercises as often as recommended, you have done a complete workout at home. Additional videos include exercise ideas, motivation, tips and tricks, challenges, Rock Steady Boxing event videos, and personal stories.

Ruth Davidson Hahn and Company Dance Classes

Ruth Davidson Hahn and Company specializes in Dance for Parkinson’s and Movement & Music classes. In light of COVID-19, the company has created a video archive of Parkinson’s dance classes.